Friday, June 19, 2009

Children's Hospital Visit

We had a full day in the hospital as our son was in for full work-ups in cardiology and pulmonary departments. As usual, nothing went as planned, but that's not to say it was a terrible day.

Children's Hospital truly is an amazing place to visit, with so many levels of humanity operating simultaneously right in front of you. There are the ordinary people on the job, taking their breaks for lunch, walking between here and there in the halls. There are families most assuredly in despair with news of their children's prognosis. There are the old hats, people who are further along on the path with their children and their long-termed issues. There are kids on the mend. The hospital has all of the hustle of walking in a city, and there is also the bureaucracy and paperwork involved in trying to accomplish anything...

What is truly amazing, though are those professionals who interact directly with the children...

There really are no words.

And it is true: When we have encountered any difficulties with the administrative folks who may lose themselves temporarily serving the system rather than the people, we have found incredible support both from unique champions close to the professional staff as well as, in our case, from members of the Muscular Dystrophy Association who are present at the hospital. We can't thank them enough.

Next week, our son is off to his first MDA Summer Camp, a full week packed with enough activities to make even me jealous!

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